How to Participate in the Alliance-Chinese Canadian Study
As of Sept. 19, 2017, over 375 participants have joined the study. We have space for approximately 125 more participants and plan to finish enrollment for the study as of October 31, 2017. If you are interested, be sure to sign up soon.
We’re extremely grateful to all of the participants who have joined the Alliance study and for your commitment to improving the health of the Chinese-Canadian community. We would encourage everyone to share information about this important study with their family and friends.
If you participate, you will be asked to complete the following:
Questionnaires about your diet, heart health, physical activities, health care, community, and culture.
Memory test, physical measurements and blood test
Magnetic Resonance Imaging (MRI) scan of your heart, brain, liver and neck. Please note that the MRI scans in this study are being done under a special research protocol and are different from those done for medical reasons. Participants will be notified (usually within 3 months of the MRI scan) if 1 of 5 severe structural abnormalities (e.g., an unexpected, potentially malignant mass) are found when the MRI scan is initially read. The other MRI measurements in the study (e.g. liver fat) are being done for research purposes only and are not disclosed back to participants as they are still undergoing scientific study.
If you participate, you will receive the following (within 3 months of completing your MRI study visit)
Short 3-D video of your heart and brain (for non-medical purposes)
Personalized heart health risk score to inform you of your heart risk
The study questionnaires are completed online and on paper at home prior to your study visit. It will take approximately 1 to 2 hours to complete the 2 online questionnaires and 1 to 2 hours to complete the paper questionnaires. Responses can be saved so the online questionnaires do not have to be completed in one sitting. Participants are requested to complete the online questionnaires within one month of enrolment.
The MRI study visit is booked once the online diet questionnaire has been completed. Please contact the Sunnybrook MRI study centre at 416-480-6100 extension 89416 if you have not been contacted to book your MRI study visit within 2 to 3 weeks of completing the online questionnaires. Due to a high level of interest in the study, it may take a few weeks to a few months before the MRI scan is completed.
The questionnaires are in English. Translated versions in simplified/traditional Chinese are also available.
Participants who only speak Chinese or limited English are welcome to participate if they have an English-speaking relative who can assist them with understanding the instructions for completing the questionnaires where necessary and is able to come with them to translate at the MRI study visit. Chinese-speaking research assistants from the Sunnybrook MRI team will be assigned to help these participants.
Some of the questionnaires participants will be asked to complete is available online. By completing these surveys online, you will help the Alliance reduce our impact on the environment! It’s also faster and easy to use!
We see all our participants as partners in research and are excited to work with you on this novel project. Your contribution will enable Canadian scientists to better understand the early causes and risk factors of cardiovascular disease and cancer in order to guide future research, to evaluate new therapies and inform public policy.